Abstract Library

#2928 Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumour (NET) Patients (SCAN) – Assessment of Early Diagnosis

Introduction: SCAN measured global readiness to provide diagnostics and treatments for NET patients in terms of awareness, availability, quality and affordability.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author: Van Genechten D

Authors: Van Genechten D, McDonnell M, Rodien-Louw C, Dureja S, Leyden S,

Keywords: Neuroendocrine Tumours, Survey, Earlier diagnosis,

#2296 First Patient Survey about Tumor - Associated Fatigue in NEN

Introduction: Tumor-associated fatigue (TrF) is a debilitating condition occurring during the course of the tumor disease, and even ongoing after all tumor specific therapies are completed. The syndrome consists of chronic fatigue, sleep disturbances, severe pain, brain-fog and is underestimated by both, patients and doctors. Diagnosis is made according to the criteria by Cella (Cella 2001), although it is felt not to be sufficient.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: Germany P

Authors: Banz S, Mellar K, Letsch A, Scheibenbogen C, Pavel M,

Keywords: Tumor related fatigue, online survey, support group, Quality of Life, ability of work,

#2263 Patient Survey Devoted to Characterizing Experience and Expectations of Patients with Neuroendocrine Tumors (NET)

Introduction: Patients (pts) with NET experience consequences of disease progression and treatments; their preferences can influence the choice and success of therapeutic strategies.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: SARABI M

Authors: Sarabi M, Gueguen D, Walter T, Hentic O, Baudin E,

Keywords: Patient Report Outcomes, Neuroendocrine Tumor, Quality of life,

#2179 Exploring Nutrition Screening and Management Practices amongst Health Professionals Managing Patients with Neuroendocrine Tumors

Introduction: Patient’s with neuroendocrine tumours (NET) are at nutritional risk due to symptoms and side-effects of treatment. Current evidence based guidelines lack information regarding optimal nutritional management and supportive care.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: Kennedy E

Authors: Kennedy E, Kiss N, Michael M, Gough K, Drosdowsky A,

Keywords: neuroendocrine, health professional, nutrition, symptoms, malnutrition,

#2028 Education and Preparation for Nuclear Medicine Procedures in Neuroendocrine Tumor Patients

Introduction: In 2007, a coalition of health care organizations formed around the a unified goal of improving imaging safety and quality for adults (Image Wisely) and children (Image Gently). In 2008, the Society of Nuclear Medicine (SNMMI) joined this coalition, embracing its role in providing outreach to the patient community. The Society has created an annual patient program to reach patients and caregivers, and is continually seeking input from the patient community to improve the program and other online educational resources.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: Mailman J

Authors: Mailman J, Budzinski L,

Keywords: Imaging, Nuclear Medicine,